I haven't posted in forever! So decided it was time!
So I actually just got back from 2 weeks in Maine a couple days ago. My family and I go almost every summer, and it's absolutely beautiful there. I was definitely worried this time though, as this was the first time I'd be going since my health went downhill a year and a half ago. Thankfully, I was able to do more than I thought i would. I definitely had days where i stayed home at our cottage all day, but I also had days where I was able to get out and go to the beach, out for dinner, or even shopping for an hour or two! The shopping especially surprised me, as I didn't think I'd be well enough for any at all. All this has kind of made me wonder if there really is a mold issue here at home that needs to be dealt with. The fact that I seemed to do better away from home is both encouraging and worrying. We have tested the house (using the ERMI mold test) and came up a bit above what is considered "safe" for that test. But, with all the research I've done, I haven't really been able to find anyone who got a score much lower than ours, and black mold (the really bad one) wasn't present in our testing so I just don't know.
Anyways, now i'm back home, still on a bunch of supplements/vitamins. Still trying desperately to get back some sort of "normal". I'll have a follow up appointment with my LLND in a week and see if she has any new ideas. I feel like I'm definitely thinking more and more about finding another doctor as well though, since i'm not making much progress with my current one (and have been with her for about 9 months now).
If anyone has experience with dealing with mold, especially in relation to Lyme, please feel free to contact me! Or if you have a super wonderful miracle worker doctor that is good with hard cases :) haha